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chILDRANZ Interstitial Lung Diseases self-reported surveys

dataset
posted on 25.06.2020 by Melbourne Academic Centre for Health (MACH)
Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by carers of participants.

History

Institution name

Murdoch Children's Research Institute

Unit name

Australian Genomics

Principal contact name

Stefanie Elbracht-Leong

Principal contact email address

stef.elbrachtleong@mcri.edu.au

Dataset ID

chILDRANZ Surveys

Available for research?

Yes

Collaborating institutions information

AGHA collaborators and partners.

Number of people/participants

22

Data source

  • Research

Study or collection type

Research database/databank

Data collection started

October 2018

Dataset still being added to?

Yes

Additional comments

All AGHA flagship datasets are under embargo for external access until 12 months after the final sequencing report for that flagship has been delivered.

Exports