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Victorian Prader-Willi syndrome Register
datasetposted on 25.06.2020, 05:54 by Melbourne Academic Centre for Health (MACH)
Victorian Prader-Willi Syndrome register collects basic information about individuals with PWS born or living in Victoria. The register is important in allowing RCH to determine the rate of PWS in Victoria and the health and behavioural effects of this condition on the individual and their families. The information collected will contribute to learning more about PWS in Australia and worldwide.
Institution nameMurdoch Children's Research Institute
Unit nameNeurodisability and Rehabilitation
Principal contact nameDavid Amor
Principal contact email email@example.com
Dataset IDVictorian Prader-Willi Syndrome register
Available for research?Yes
Number of people/participants200 approx.