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Victorian Prader-Willi syndrome Register
dataset
posted on 2020-06-25, 05:54 authored by Melbourne Academic Centre for Health (MACH)Victorian Prader-Willi Syndrome register collects basic information about individuals with PWS born or living in Victoria. The register is important in allowing RCH to determine the rate of PWS in Victoria and the health and behavioural effects of this condition on the individual and their families. The information collected will contribute to learning more about PWS in Australia and worldwide.
History
Institution name
Murdoch Children's Research InstituteUnit name
Neurodisability and RehabilitationPrincipal contact name
David AmorPrincipal contact email address
david.amor@mcri.edu.auDataset ID
Victorian Prader-Willi Syndrome registerAvailable for research?
- Yes
Number of people/participants
200 approx.Data source
- Research
Study or collection type
- Clinical register
Data collection started
Not providedDataset still being added to?
- Yes