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Victorian Cerebral Palsy Register

dataset
posted on 25.06.2020 by Melbourne Academic Centre for Health (MACH)
The Victorian Cerebral Palsy Register collects information on people with cerebral palsy, born or living in the Australian state of Victoria since 1970. The Register was founded by Professor Dinah Reddihough in 1987 and is now one of the largest geographically-defined cerebral palsy registers in the world, holding information on over 5200 individuals with cerebral palsy. Information collected on individuals includes demographic information, birth details, known or apparent causes, type and severity of the cerebral palsy and any associated impairments.

History

Institution name

Royal Children's Hospital

Unit name

Neurodisability and Rehabilitation

Principal contact name

Dinah Reddihough

Principal contact email address

dinah.reddihough@rch.org.au

Dataset ID

https://www.mcri.edu.au/research/projects/victorian-cerebral-palsy-register

Available for research?

Yes

Collaborating institutions information

Yes. Data shared with national CP register.

Number of people/participants

6,000 +

Data source

  • Clinical
  • Research

Data source details

The dataset is primarily used for epidemiological research but also acts as a sampling frame for clinical and other research.

Study or collection type

Diagnostic database/databank

Data collection started

1987

Dataset still being added to?

Yes

Exports

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Exports