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Leukodystrophies self-reported surveys
dataset
posted on 2020-06-25, 05:40 authored by Melbourne Academic Centre for Health (MACH)Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
History
Institution name
Murdoch Children's Research InstituteUnit name
Australian GenomicsPrincipal contact name
Stefanie Elbracht-LeongPrincipal contact email address
stef.elbrachtleong@mcri.edu.auDataset ID
Leuko SurveysAvailable for research?
- Yes
Collaborating institutions information
AGHA collaborators and partnersNumber of people/participants
30Data source
- Research
Study or collection type
- Research database/databank
Data collection started
November 2017Dataset still being added to?
- Yes