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Epileptic Encephalopathy self-reported surveys

dataset
posted on 25.06.2020 by Melbourne Academic Centre for Health (MACH)
Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.

History

Institution name

Murdoch Children's Research Institute

Unit name

Australian Genomics

Principal contact name

Stefanie Elbracht-Leong

Principal contact email address

stef.elbrachtleong@mcri.edu.au

Dataset ID

EE Surveys

Available for research?

Yes

Collaborating institutions information

AGHA collaborators and partners

Number of people/participants

105

Data source

  • Research

Study or collection type

Research database/databank

Data collection started

February 2017

Dataset still being added to?

No

Additional comments

All AGHA flagship datasets are under embargo for external access until 12 months after the final sequencing report for that flagship has been delivered.

Exports