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BRAIN (ACCORD)

dataset
posted on 28.06.2020, 00:36 by Melbourne Academic Centre for Health (MACH)
BRAIN is a prospective, non-interventional clinical registry of the treatment and outcomes of patients with brain tumours managed at participating hospital in routine clinical practice.

History

Institution name

Walter and Eliza Hall Institute of Medical Research (WEHI)

Unit name

Walter and Eliza Hall Institute of Medical Research (WEHI)

Principal contact name

Maria Edmonds

Principal contact email address

edmonds.m@wehi.edu.au

Dataset ID

https://www.biogrid.org.au/data-directory

Available for research?

Yes

Collaborating institutions information

Participating institutions have access to datasets for all patient data but can only see their own sites data. They get ethics and governance approval.It collects clinical data but research questions can be answered according to the datasets generated. Melbourne Health Bendigo Health Royal Hobart Hospital St Vincent's Hospital Melbourne Alfred Health Monash Medical Centre South West Health Care

Number of people/participants

5000+

Data source

  • Clinical
  • Research

Data source details

It collects clinical data but research questions can be answered according to the datasets generated. It is undergoing migration to accept registry trials.

Study or collection type

Clinical register

Data collection started

1999

Dataset still being added to?

Yes

Additional comments

The contributors to this project are in two streams. Participating institutions have access to datasets for all patient data but can only see their own sites data. The funders are able to ask for de-identified reports. This is approved internally by the Data Analyst at BioGrid and these projects receive full ethics and governance review at participating centres. Migration ongoing at the moment to accept registry trials data to be captured.

Exports