Victorian Prader-Willi syndrome Register
Melbourne Academic Centre for Health (MACH)
10.26188/12489365.v1
https://melbourne.figshare.com/articles/dataset/Victorian_Prader-Willi_syndrome_Register/12489365
Victorian Prader-Willi Syndrome register collects basic information about individuals with PWS born or living in Victoria. The register is important in allowing RCH to determine the rate of PWS in Victoria and the health and behavioural effects of this condition on the individual and their families. The information collected will contribute to learning more about PWS in Australia and worldwide.
2020-06-25 05:54:39
Prader-Willi syndrome
Chromosomal aberrations
Neurology and Neuromuscular Diseases
Medical Genetics (excl. Cancer Genetics)
Paediatrics