HIDDEN Renal Genetics self-reported surveys
Melbourne Academic Centre for Health (MACH)
10.26188/12480449.v1
https://melbourne.figshare.com/articles/dataset/HIDDEN_Renal_Genetics_self-reported_surveys/12480449
Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
2020-06-25 05:51:47
Kidney disease
End stage kidney disease
Rare diseases
Health economics
Self-reported data
Survey responses
Genomic testing
Patient experience
Nephrology and Urology
Medical Genetics (excl. Cancer Genetics)
Paediatrics