10.26188/12479999.v1
Melbourne Academic Centre for Health (MACH)
Melbourne Academic Centre for Health (MACH)
KidGen Renal Genetics self-reported surveys
The University of Melbourne
2020
Kidney Diseases
Survey responses
Patient experience
Genomic testing
Self-reported data
Health economics
Medical Genetics (excl. Cancer Genetics)
Nephrology and Urology
Paediatrics
2020-06-25 05:43:34
Dataset
https://melbourne.figshare.com/articles/dataset/KidGen_Renal_Genetics_self-reported_surveys/12479999
Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.