10.26188/12479405.v1 Melbourne Academic Centre for Health (MACH) Melbourne Academic Centre for Health (MACH) Leukodystrophies self-reported surveys The University of Melbourne 2020 Brain Leukodystrophy Neurodegenerative Diseases Genomic Testing Self-reported data Patient experience Survey responses Health economics Central Nervous System Neurosciences not elsewhere classified Paediatrics 2020-06-25 05:40:10 Dataset https://melbourne.figshare.com/articles/dataset/Leukodystrophies_self-reported_surveys/12479405 Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.