10.26188/12479405.v1
Melbourne Academic Centre for Health (MACH)
Melbourne Academic Centre for Health (MACH)
Leukodystrophies self-reported surveys
The University of Melbourne
2020
Brain
Leukodystrophy
Neurodegenerative Diseases
Genomic Testing
Self-reported data
Patient experience
Survey responses
Health economics
Central Nervous System
Neurosciences not elsewhere classified
Paediatrics
2020-06-25 05:40:10
Dataset
https://melbourne.figshare.com/articles/dataset/Leukodystrophies_self-reported_surveys/12479405
Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.