10.26188/12479354.v1
Melbourne Academic Centre for Health (MACH)
Melbourne Academic Centre for Health (MACH)
Epileptic Encephalopathy self-reported surveys
The University of Melbourne
2020
Genomic testing
Self-reported data
Survey responses
Patient Experience
Epilepsy
Neurosciences not elsewhere classified
Motor Control
Central Nervous System
Paediatrics
2020-06-25 05:36:38
Dataset
https://melbourne.figshare.com/articles/dataset/Epileptic_Encephalopathy_self-reported_surveys/12479354
Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.